Our Committee and Staff

Your Committee

Gavin Finkelstein, President 

Hi, I'm Gavin Finkelstein, I have severe haemophilia A and hepatitis C. I joined the HFWA Committee in 1995 and since then have become more and more involved in haemophilia issues in WA and around Australia. I have found joining HFWA to be a worthwhile experience, meeting some inspirational people and having the opportunity to discuss and share the many issues that haemophilia brings to our lives. It is up to us as a community to ensure that kids today and in the future receive the latest and best treatment that is available to enable them to achieve the best quality of life without haemophilia being an issue.

Cheryl Ellis, Vice President

Hi everyone, my name is Cheryl Ellis and I have been a HFWA committee member since 2005. I am a carrier of the haemophilia gene and have two boys who both have severe haemophilia A. I am a theatre trained registered nurse and my husband Darren and I run our own business building swimming pools. I believe it is important to keep up to date with information relevant to our community; whether it is to do with advances in treatments, products and services available to us to make our lives easier, or the rights of our members to live full and happy lives.

Robert Butler, Treasurer

I am Robert Butler and I am Treasurer of the Haemophilia Foundation of WA. I am an Accountant in Private Practice in Balcatta, my wife's name is Sheryl and she is a Family Law Solicitor, (if anyone needs one). We have two children, Marc, who is a very good Financial Planner, and Claire, who is a Geologist. We have been members of HFWA for about 25 years. Initially our interest/involvement was as parents of a haemophilia sufferer, wanting knowledge and peer support. As the foundation, (Society in earlier days), is always working for the benefits of all our members, it always needs people who can help it carry out its functions and as an accountant I felt I could help by doing the accounts, and that has been an ongoing involvement for me.

Shane Meotti, Committee Secretary

My name is Shane Meotti and I have served on the HFWA Management Committee since 2010. My son Zavier has severe Haemophilia A and together with my wife Alannah and daughter Khaleela we've been part of the HFWA community since moving to Perth in the late 1990's after Zavier was diagnosed. I work at Curtin University in a Project Management role and I have a background in IT Management and Hospitality. The time I have spent on the committee has been very rewarding and Zavier's journey with Haemophilia has certainly been made easier by the tremendous work of the State and National Foundations and the support of so many in our community.

Pamela and Brian Wall

Hi, we are Pamela and Brian Wall.  We are parents of teenagers.  Joshua is 15 years old and has Severe Haemophilia A and Aaliyah is 13 years old and is a sibling of a child with Haemophilia.  To us they are both super special and important in this journey as a family with Haemophilia.  We both decided to become members of the committee to extend our family knowledge and growth with bleeding disorders and support our son as he grows.  As our son starts to journey through independence all of our family wants to continue to contribute to others, our experiences.  We want to provide our son and daughter a path on which to continue within the foundation as teens an help others along the way.  We are a FIFO family and we work very closely to ensure this works for our family as a whole and where our family is concerned emotionally and mentally.  We look forward to helping as much as we can and being a support to other families and members.

Susie Couper

My name is Susie Couper, my son Justin has severe von Willebrands (type 3) and I have von Willebrands type 1. I work at Bankwest in Knowledge Management - keeping policies and procedures on the straight and narrow for our regulators. Justin's diagnosis resulted in a rapid introduction to the previously unknown world of bleeding disorders. I have always found HFWA to be passionate, supportive and dedicated to improving the well being of the bleeding disorder community. I am grateful for the continual learning opportunities that being involved in the foundation gives me, with plenty of robust conversations in our committee meetings . I have a special interest in inclusion, having seen the many benefits of being involved in our many peer activities.

Dale Spencer

Hello everybody my name is Dale Spencer. I have severe Haemophilia A and I am one of the representatives on the HFWA committee, Youth Delegate and Youth Mentor. I've grown up in metro Perth my whole life, have lived as far North as Joondalup and as far South as Byford, although I'm currently residing where I spent most of my childhood; in Forrestfield. I'm proud father to two beautiful children Ebony-Rose (7) and Braxton (4), as far as I'm aware my daughter is a carrier of the Haemophilia gene. I am shortly moving into my third year of my apprenticeship as an Industrial Electrician and work for a great company based in Landsdale. I was always heavily involved in my sport and played (very competitive) basketball up until the age of 18, when my joints started telling me it was time to hang up the boots for good. Throughout my childhood I grew up involved in the HFWA community and I was always welcomed with open arms at all events/ camps. Throughout my early teen years I took some time away from the community to work on myself and decided to join the now defunct HFA Youth Committee that I eventually became co chair of. A couple of years ago Brian and Pam Wall and myself decided to start up a small Youth Group, which to this day has became one of the most successful Youth Groups. Being involved with HFWA from a very young age has really made me appreciative everything the foundation stands for and I'm proud to step up to the plate and put back in what the foundation has given me.

Our Staff

Deborah Barnes, HFWA Office Coordinator

Deborah comes to us by way of England and New Zealand and has been in WA for seven years. She has a large extended family who have been in Perth for over 40 years and ties to WA going back over 100 years through her great, great, great grandparents on both sides of her family tree. She has worked with community based organisations for over 25 years, including community based organisations in Perth. She brings an extensive background in many valuable aspects of administration to HFWA including experience in working with computers, office systems, communications and events. Deborah has always chosen to work with organisations that make a difference for the better in people’s lives, just as HFWA does.