WA Health Social Work DRAFT

Contact

Charlotte Bradley-Peni
Fiona Stanley Hospital
Level 1, Cancer Centre
102-118 Murdoch Drive
MURDOCH  WA  6149
Locked Bag 100
PALMYRA DC  WA  6961
P/text: 0404 039 971
E: [email protected]


Date last reviewed: 08/03/2019

Haemophilia and Bleeding Disorders Paediatric State-wide Social Work Service.

The paediatric haemophilia and social work service aims to identify and address the impact of the bleeding disorder and associated psychosocial issues for patients and their families by providing a range of services which increase quality of life and participation in care.

The Social Work service includes:

  • Complex care planning, involving coordination of a range of services, management of complex family dynamics, management of carer stress and other issues that may impact on the patient and families day to day experience related to a bleeding disorder.
  • Guidance and support for patients and families experiencing a new diagnosis
  • Counselling patients and families experiencing a bleeding disorder
  • Professional assessment and intervention with complex social problems
  • Provision of information related to community support services, specialist agencies and support groups
  • Assistance with legal and financial matters including assistance with applications
  • School visits advising educators about the impact of haemophilia and education
  • Home and community visits
  • Facilitation of discharge via service coordination, liaison, referral, resourcing and advocacy

Date last reviewed: 05/03/2019

Haemophilia Treatment Centre Team

  • Consultant Haematologist - Dr Tina Carter
  • Clinical Nurse Consultant - 
  • Clinical Nurse - Natalie Gamble-Williams
  • Social Worker - Charlotte Bradley-Peni
  • Physiotherapist - Ali Morris
  • Consultant Rheumatologist - Dr Pavla Walsh
  • WA ABDR Data Manager - Marina Goruppi

Clinic

The Paediatric Haemophilia and Bleeding Disorders Clinic is held on Ward ....... on the first Tuesday of each month.  Dates are subject to change around public holidays.

Following diagnosis your appointments are sent via mail.  Please ensure that your details are up to date to avoid missing appointments.  You will be assigned appointment times relevant to your condition.

If you are travelling from Country WA, please see travel and accommodation supplement information.

Emergencies

During 2016 the Haemophilia Treatment Team adopted a new approach to the emergency procedures process as outlined in the November 2016 Contact Newsletter by Head of Oncology and Haematology Department Consultant Haematologist Nick Gottardo.

Should the child become unwell or requires a medical review, call the haemophilia nurse on:

  • 0466 318 286 Monday to Thursday 8:30am to 4:30pm, or
  • 0410 717 816 during after hours
  • The nurse will advise you if you need to be seen immediately or can be booked into an outpatient appointment
  • If the child needs to be seen urgently you will be advised to present at the Perth Children's Hospital Emergency Department.  Make Sure you bring the Child's ABDR card and present it to the staff upon arrival.  This card will ensure that your child is seen promptly by the medical team and the specialist Haematology care is given.

It is vital if you are home and your child requires emergency care (for example, fitting, having breathing difficulties, serious injury or is unresponsive), call 000 immediately and request an ambulance.

For all non-urgent queries such as appointment changes, please call 9340 8682.

Consent to Treatment

Under the Commonwealth Family Law Act 1975 responsibility for any children who are under 18 years of age rests with parents and legal guardians.

For detailed information pertaining to consent to treatment, please visit the WA Health Consent to Treatment Policy.

Child and Adolescent Health Service Family Handbook

Child and Adolescent Health Service Customer Service Charter


Date last reviewed: 05/03/2019

The Fiona Stanley Hospital Social Work service is for adult out-patients who have a diagnosis of Haemophilia, von Willebrand Disease or other bleeding disorder.  The Social Worker is located at the Haemophilia Treatment Centre Mondays and Thursdays 8:00am to 4:30pm.

The role includes psychosocial assessment, counselling and psycho-social support for individuals and family, provision of resource information and coping strategies, access to community services and advocacy.  The service covers a wide variety of issues that affect the Haemophilia and Bleeding Disorders community including ageing, disability, adjustment, relationships, and financial management.

Referrals to Social Work

  • Clinic referral
  • Self-referral
  • Community agency referral

Date last reviewed: 05/03/2019

Haemophilia Treatment Centre Team

  • HTC Director and Consultant Haematologist - Dr. Stephanie P'ng
  • Consultant Haematologist - Dr. Dominic Pepperell
  • Clinical Nurse Donsultant - Sandra Lochore
  • Social Worker - Charlotte Bradley-Peni
  • Physiotherapist - Carole Steinier
  • WA ABDR Data Manager/Trial Coordinator - Marina Goruppi

Clinic

The Adult Haemophilia and Bleeding Disorders Clinic is held at the Fiona Stanley Hospital Treatment Centre every second Monday.  Dates are subject to change around public holidays.

Your appointments are sent via mail, please ensure that your details are up to date to avoid missing appointments.  You will be assigned appointment times relevant to your condition.

If you are travelling from country WA, please follow this link for travel and accommodation supplement information.

Services

The Adult Social Work service at Fiona Stanley Hospital provides a range of psychosocial services including assessment, counselling and psycho-social support for individuals and family, provision of resource information and coping strategies, access to community services, and advocacy.  The service covers a wide variety of issues that affect the Haemophilia and Bleeding Disorders community including ageing, disability, adjustment, relationships and financial management.

Should you require assistance in the community as a result of your bleeding condition the HTC Social Worker is available to link you with the appropriate community agency.

Such agencies include, but are not limited to:

  • Home and Community Care (HACC), can be accessed at the following website:
    This program provides assistance including with household tasks, meals, minor work in the garden, nursing care, personal care.  qualification for this service is not aged-related but is dependent on factors including the level of disability.  Application is through the Aged Care Gateway on 1800 200 422.
    Further information is available through WA Regional Assessment Service, telephone 1300 785 415 or HACC service providers such as Silver Chain. 
  • Aged Care Assessment Team (ACAT) assessments:
    An assessment is needed where there are complex aged care needs and services (including respite, residential care, or home support services) are required.
    Referrals to ACAT can be made by anyone, and it does not have to be from a doctor.  GPs are often the referrer, but also families and other professionals.  ACAT assessments are made in hospital or in the community by an ACAT team usually consisting of nurse, social worker or other health care professional.  The above information can also be sourced in the following website: 

 


Date last reviewed: 05/03/2019

If you are travelling to Perth Children's Hospital from more than 100km outside the metropolitan area you may be eligible for some refund on travel expenses.  To access the scheme, you must apply to your nearest hospital or nursing post before you leave home.  When you get to Perth Children's Hospital, please present the PATS form for the Doctor, Social Worker or Nurse to sign to the Ward Clerk on the ward your child is visiting.  For further queries, contact your local PATS office.

Are you eligible for the Patient Assisted Travel Scheme?

www.youtube.com/watch?v=nSUZl8u53q0&feature=youtu.be
PATS Guide for patients and carers
Six easy steps to PATS


Date last reviewed: 05/03/2019